Medicare Falls Short on Long-Term Care: Families Face Financial Strain

When your mom falls and can’t manage at home anymore—or your dad’s memory starts slipping and he needs round-the-clock help—it’s often the adult children who get the first call. You may have already received that call or will in the future. Your adult children may get that call for you in the future. That’s when the panic sets in.
When aging parents or loved ones suddenly require assistance with daily activities—such as bathing, dressing, using the bathroom, or managing cognitive decline—families often find themselves unprepared. A common misconception is that Medicare will cover these long-term care needs, but in reality, its coverage is limited. This misunderstanding can lead to significant financial strain, emotional stress, and challenging caregiving decisions.
You may assume Medicare will step in to cover a home caregiver, assisted living, or a nursing home stay. But that’s rarely the case. Instead, you’ll learn—often in the middle of a crisis—that Medicare only covers short-term skilled care and only under very specific conditions. The rest is on you.
Suddenly, your family is scrambling to figure out how to pay $6,000 to $10,000 monthly for care, and these extended care costs climb yearly. Some families drain retirement accounts. Others move a parent into their home.
Some adult children take unpaid leave from work or quit their jobs altogether to become caregivers. In most cases, no one saw it coming.
“It was devastating. Medicare didn’t pay for anything we thought it would,” said Lisa M., a 58-year-old daughter from Knoxville, TN, who ended up caring for her mother with dementia.
I had to leave my job. I was burned out, broke, and angry—mostly at myself for not knowing.
This story plays out in households across the country. A lack of understanding of the differences between Medicare, Medicaid, and Long-Term Care Insurance leads to emotional and financial upheaval at the worst possible time.
Consider the experience of Nancy B. from Grand Rapids, Michigan. When her husband's health deteriorated due to dementia and frequent falls, Nancy faced the daunting task of securing appropriate long-term care services.
Despite her efforts and hundreds of thousands of dollars, her husband became more dependent on others and passed away a few years after being placed in a memory care facility, highlighting the difficulties many families encounter when navigating long-term care without adequate planning.
Medicare's Limitations in Long-Term Care
Medicare, the federal health insurance program for individuals 65 and older, covers various medical needs. Everyone pays taxes for Medicare during their working years (the FICA deduction on your paycheck.) However, its support for long-term care is minimal:
Covered Services
- Short-term skilled nursing care following a qualifying hospital stay
- Short-term home health services for specific conditions (like following a surgery)
- Hospice care for terminal illnesses
Excluded Services
- Custodial care (assistance with daily activities like bathing, eating, personal hygiene, and dressing, for example)
- Long-term stays in nursing homes or assisted living facilities
Even with supplemental plans, Medicare does not cover the extensive long-term care services many seniors require.
Medicare and supplemental plans cover a lot of medical care—but not long-term care services that most seniors eventually need. Families often don’t realize the gap until extended care is needed and the bills start coming in.
Medicaid: Comprehensive Coverage with Eligibility Constraints
Medicaid offers more extensive long-term care coverage, including:
- Nursing home care
- Home and community-based services
- Some assisted living services
Medicaid coverage for home and community-based services—and some assisted living—is primarily limited to state-run Medicaid Waiver Programs. These waivers allow states to fund non-institutional care for individuals who would otherwise require a nursing home level of support. When available, services are only covered through approved providers who accept Medicaid reimbursement, and access may be limited by waitlists or provider availability in your area.
However, eligibility is means-tested, requiring individuals to meet strict income and asset criteria, which vary by state. This often necessitates spending down assets to qualify, potentially impacting a family's financial stability.
The Growing Demand for Long-Term Care
According to the U.S. Department of Health and Human Services, approximately 56% of Americans turning 65 will develop a disability due to a chronic illness, accident, dementia, or frailty that is serious enough to require long-term services before they die. With the aging population, the demand for long-term care is increasing, emphasizing the importance of planning.
Long-Term Care Insurance: A Proactive Solution
Long-Term Care Insurance will help pay for the costs of extended care services. An LTC policy provides many benefits for you and your family:
- Financial Protection: Helps preserve savings and assets
- Choice of Care: Offers flexibility in selecting quality care providers, including at-home
- Relief for Family Members: Reduces the caregiving burden on loved ones
Many experts say it is advisable to consider LTC Insurance before retirement, as premiums are more affordable and eligibility is easier to obtain at a younger age because of medical underwriting.
Learn more with the LTC News Long-Term Care Insurance Education Center.
Seeking Professional Guidance
Navigating long-term care options can be complex. Consulting with a Long-Term Care Insurance specialist can provide personalized advice, helping you choose a policy that aligns with your health status, financial situation, and care preferences.
After reviewing your options with a qualified specialist, the next step is to apply for coverage. A professional should assess your health and family history in detail—including prior surgeries, prescriptions, and any chronic conditions—before submitting an application. Unfortunately, many general agents and advisors overlook this critical step, which can lead to application denials or delays.
Most top LTC insurance specialists work with clients nationwide, as only a small number truly focus on this niche. A specialist can help you understand your options, compare quotes, and even complete the application process securely from your computer.
During underwriting, the insurance company—and sometimes the specialist assigned to your application—may contact you directly. Communication often happens via text or email, so it’s important to respond promptly to keep the process moving smoothly.
Insurance text message marketing software is becoming popular as a way to stay in touch with clients and is now an acceptable and safe way to communicate.
Planning Now
Understanding the limitations of Medicare and the qualifications for Medicaid is crucial in preparing for potential long-term care needs.
Proactively exploring Long-Term Care Insurance can offer peace of mind, ensuring that you and your family are better equipped to handle future care requirements.
Most people purchase a Long-Term Care policy between the ages of 47 and 67. No matter your age, your health today is the top priority. You need to be reasonably healthy to get an LTC policy, although underwriting standards and premiums vary widely.
A qualified LTC Insurance specialist will often have the LTC News Trusted certification, as they are screened by LTC News and hold the esteemed CLTC designation, are endorsed by the American Association for Long-Term Care Insurance (AALTCI), and come highly recommended as Ramsey Trusted Pros by financial expert Dave Ramsey's organization (Ramsey Solutions).
Avoid a family crisis in the future by planning now. For older loved ones, use the LTC News Caregiver Directory to find qualified in-home caregivers and long-term care facilities.