Coping with Spouse or Parent’s Declining Health

Every American family at some point will experience a loved one’s health decline. How do you cope? How can you prepare for the costs and burdens that come with long-term care?

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Coping with Spouse or Parent’s Declining Health
7 Min Read August 26th, 2020

Life can bring so much joy for the years. However, in life, we face struggles and challenges. One of the most profound events we face is the decline of a spouse's or parents' health.

We know the realities of life. We face health and age crises as we get older. Some come and go quickly. As medical science continues to advance, we enjoy longevity. Even with health and aging issues, we continue to live.

The consequences of living with declining health impact us emotionally. The cost of care can impact us financially. The stress and strain will be tremendous on the whole family.

Dealing with Denial

One of the first issues everyone faces is denial on somebody's part. Once someone in the family mentions a loved one's declining health, the rest of the family can become emotional. The family can go into a tailspin as family members discuss the reality or, in their mind, the overreaction of the changing health events.

A spouse and adult children often will want to ignore the obvious. The person whose health is declining may resist the need for help and assistance. The spouse may become defensive. Siblings will fight among themselves about how to best handle the upcoming crisis.

A spouse's relations with the person who is experiencing declining health will change, often dramatically. The change brings challenges to the relationship itself.

Instead of enjoying life and normal activities, everyday life routines now include doctor's visits, testing, assistive devices, outside caregivers, and lower energy and activity levels.

Depression and Anxiety is Common for Family

Watching the slow decline of a parent or spouse can bring on depression and anxiety, not to mention the depression and anxiety of the care recipient. You start thinking about activities that were on the "to-do" list that may never get done. The "what ifs" start to become very loud in your head.

Adult children think what if they were more involved; maybe they could have encouraged their parent to seek medical attention sooner. The level of guilt and despair increases. Generally, no advance plan or conversation about long-term care and aging has taken place. For families with a plan in place like Long-Term Care Insurance, it makes it easier but doesn't change the reality.

An analysis of 168 studies into family caregiving shows that spouses who take on the role of caregivers suffer from higher levels of depression and financial issues along with physical burdens. Their well-being is negatively affected, as well.

The adult children and children-in-laws see their relationship with the care recipient as less favorably. These family caregivers face the challenges of addressing their own careers, families, responsibilities, and being a caregiver. These roles bring stress and strain physically, emotionally, and financially.

Relationships Change

A spouse who is also a caregiver has a higher level of a perceived burden than other caregivers. The reality of their loved one's potential death, which they have often lived with for decades, is very stressful. The loss of normal companionship and the sharing of activities that may be limited or eliminated changed the relationship dynamic.

Older spouses looking at eachotherThe research also indicates that since the spouse usually is living with the care recipient, they often provide more hours of care and support and, as a result, get less respite from the caregiver role than adult children and children-in-law.  

The other problem is the spouse is often older themselves when age-related health issue impacts the other spouse. The age factor increases the risk of their own health decline when providing long-term care services for their loved one. However, as we all enjoy greater longevity, even adult children are often older themselves and face their own levels of depression and anxiety and challenging health concerns that get magnified when providing care for Mom or Dad.

Coping with Life’s Changes

While experts say we should understand it is the natural order of things, dealing with the stress, anxiety, health, and financial concerns are real. It brings many questions about coping with the challenges, especially when there is no help from insurance.

Woman Thinking

Some of the common questions are as follows:

  • "How do I deal with my overwhelming sadness at seeing the decline of a spouse's or parent's health?"
  • "I can't stop crying, how do I make it go away?
  • "What could I have done differently to have prevented this from happening?"
  • "How do I live my life now that this is going on?"
  • "How do I deal with this change's grief, and am I being too selfish?"

Eldercare Link offers many suggestions. As we become at peace with mortality, including your own, you will be better equipped to find the joy still left and better handle the situation's stresses.

Talking is Beneficial

The conversation is always something professional counselors suggest as a tool to better deal with any crisis in our lives. Whether it's a conversation with your spouse or parent as they begin to become frail or suffer from health or cognitive issues or your own conversation with your inner circle to share your concerns with other people you love and trust, the goal is to talk.

This article offers many suggestions that will help you start on those conversations with a declining loved one and family members.

Dr. John Rolland, an adjunct professor at Northwestern University's Feinberg School of Medicine and author of the book "Helping Couples and Families Navigate Illness and Disability: An Integrated Approach," Says couples need to adjust their expectations. While they need to accept what is being lost due to an illness or aging, they still need to understand what they still have together.

This same advice is applied to adult children and grandchildren. The person is they love is still there. Focus on being family and try not to focus on the negative.

When a Parent or Spouse Has Dementia

Adjusting to a parent or spouse with some form of dementia is very challenging. People must redefine their roles, accept change, and adapt to the reality you are facing. For a spouse, they must realize their marriage is now different. While some people can understand physical deterioration, the cognitive decline can be more difficult, especially if physically, they are still reasonably healthy.

Some tips when dealing with a loved one who has dementia:

  1. Education. Learn what you can about the problem. The more you know, the better you can know what to expect as time goes by and adjust to the new reality.
  2. The spouse or parent's behavior will change as dementia progresses. The behavior is not intentional. Even so, it is hard emotionally to accept when they are acting out or acting in a way they would never have done so in the past.
  3. Seek help. Find help from every available source. If you have Long-Term Care Insurance use the benefits. Sometimes families want to delay using benefits to "save it for a rainy day." Don't delay the claim.
  4. Support Groups. There are many groups where you can meet with others experiencing the same things you are experiencing. The conversation will give you better peace-of-mind.

Prepare for the Consequences of Aging

Understand none of us are immune to the consequences of aging and health changes as we get older. It is beneficial to plan before these health changes occur. Affordable Long-Term Care Insurance offers the guaranteed tax-free resources which will provide you with access to quality care in the setting you desire – including care at home. This will reduce the stress on spouses and children. The policy will also safeguard income and assets to maintain independence, lifestyle, and legacy.

Long-Term Care Insurance is affordable, but you should obtain coverage in your 40s or 50s to have the lowest premiums and the most options. A qualified Long-Term Care Insurance specialist will help you navigate the options and differences between companies. You can start the comparison between insurance companies by clicking here.

Premiums can vary dramatically between insurance companies. If you shopped and saw it was expensive, speak with a specialist who works with all the top companies. Plus, Long-Term Care Insurance is custom designed. Find a trusted and experienced specialist by clicking here.

You can see the current and future cost of extended care services where you love by using the LTC NEWS Cost of Care Calculator by clicking here.

Cope as you can as you deal with a spouse or parent today. Prepare your family and finances by planning for longevity and its consequences now.

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About the Author

Linda is a freelance writer interested in retirement planning, health and aging.

LTC News Contributor Linda Kople

Linda Kople

Contributor since October 31st, 2017

Editor's Note

About half of us will need long-term care services due to an illness, accident, or the consequences of aging. Our risk increases as we get older. The risk to our finances is tremendous as care costs are increasing rapidly due to increasing demand and higher labor costs.

Yes, long-term health care costs are expensive, and you will be financially responsible if you have savings. However, long-term care is more than just a cash flow issue - it is a family issue since often, adult children find themselves in the role of being a caregiver.

Family caregivers are stressed physically and emotionally. You can reduce the financial and family burdens that long-term care places on families and finances AND ensure your choice of quality care options by adding an affordable Long-Term Care Insurance policy to your retirement plan.

Most people obtain coverage in their 50s. Are you prepared?

Planning Tools and Resources on LTC NEWS

You can find many tools and resources on LTC NEWS to assist you in your research for a planning solution or help your family find the appropriate care for a loved one at the time of crisis. 

To help you plan the costs and burdens of changing health and aging, LTC NEWS has put in place several resources, including:

Working With a Specialist is Essential 

Since Long-Term Care Insurance is custom designed ... and policies can vary in price, be sure to seek the help of a qualified Long-Term Care Insurance specialist. Be sure they understand the underwriting criteria of each company, is  with policy design, claims, and the many tax advantages that are available. Complete understanding of the federal/state partnership program is also key. Find a specialist by clicking here.

Discussion Points with a Specialist

  • Partnership – Most states offer special policies that provide dollar-for-dollar asset protection. The Long-Term Care Insurance Partnership Program might be one of the best-kept secrets in retirement planning. Make sure the specialist explains this program and how it might help you.
  • Tax incentives – There are federal tax incentives available for some people. If you own your own business be sure to ask.
  • Health Savings Accounts – If you have an HSA you can use the pre-tax money in your account to pay for the premium.
  • Asset-Based or Hybrid policies – These are life insurance or annuities with a rider for long-term care. Careful, only a handful are actually a long-term care benefit. However, one of these policies can provide you with the flexibility of both a long-term care benefit or a death benefit. They are expensive but can be paid with a single premium.
  • Health and Family History - Make sure the specialist asks you detailed questions about your health, family history, and retirement plans. Underwriting criteria varies with each insurance company. If they are not asking you detailed questions then find another specialist.

Get Expert Help Filing an LTC Insurance Claim

LTC NEWS provides free assistance with no obligation to help you or a loved one complete the claims process with your Long-Term Care Insurance policy. 

You can also get support in finding quality caregivers and get recommendations for a proper care plan, whether a person has a policy or not. - Filing a Long-Term Care Insurance Claim | LTC News

Benefits of Reverse Mortgages 

Today's reverse mortgages for those aged 62 and older could be an ideal resource to fund a Long-Term Care Insurance policy OR even provide money to pay for care if you, or a loved one, already needs help and assistance.  

Some people have much of their savings invested in their homes. With today's reverse mortgages, you can find ways to fund care solutions, care itself, even help with cash flow during your retirement. 

Learn more by asking questions to an expert. LTC NEWS columnist and host of the TV Show "62 Who Knew" will answer your questions regarding caregiving, aging, health, retirement planning, long-term care, and reverse mortgages. 

- Just "Ask Mike." - Reverse Mortgages | LTC News.

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You can write a story or ongoing column for LTC NEWS. You can write about many topics, including aging, caregiving, health, lifestyle, retirement planning, and long-term care, to name a few.

Be sure to write for our core target audience of adults aged 40 and older. Our audience is worldwide; however, our primary target is the United States, Canada, the United Kingdom, and other English-speaking nations. 

Improve your website or blog's SEO and gain exposure and traffic at the same time by being a contributor to LTC NEWS. 

You can even promote yourself, your business, and your website or blog. However, it must have editorial content exclusive to LTC NEWS and cannot be just an advertisement. It can include links to other sites, and you can share the article link once published on your website or social media.

Email your story idea or article: newsroom@ltcnews.com - LTC News Contributors | LTC News

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