Caregiving is Stressful Physically, Emotionally, and Financially

Read Time: 4:58
Published: Nov 13th, 2018
Caregiving is Stressful Physically, Emotionally, and Financially
Article Updated:June 14th, 2020

A growing body of literature shows that caregiving can be demanding and burdensome – physically, emotionally, and financially. Too often, family members become caregivers. Family members are forced into the caregiving role when there is no advance plan to address the financial costs and burdens of aging and health.

Long-term care services are often provided by unpaid, informal caregivers who are often family members, friends, or even neighbors. People require long-term care services and support due to illness, accidents, or the impact of aging.

An estimated 53.0 million adults in the United States are providing unpaid caregiving services to family members, according to a 2020 study published by The National Alliance for Caregiving (NAC) and AARP. One in five people are now caregivers.

Long-Term Care Happens at All Ages

While many people think of long-term care as something that happens to the elderly, this is not always the case. With the advances in medical science, people survive health events more than ever before. The problem is that sometimes the treatment ends up creating a need for extended care. We may recover from the illness but not wholly. As a result, this leaves too many people who need help with routine activities of daily living.

With advances in medical science, things that used to kill us no longer do. But if we do recover completely, all this does it add to our longevity. Longevity itself is a risk for long-term care.

The National Alliance for Caregiving (NAC) studied those who provide extended care at home for those who have cancer and the treatment for cancer compared to other long-term care caregiving.

The NAC notes while the effects of cancer most directly affect the individual with cancer, its impact extends to friends and family members who provide extended care at home for the person who has cancer and the effect of cancer treatment.

Today these informal caregivers are often central in providing care or assistance in both the immediate and long-term management of cancer. This is not dissimilar to those who require long-term care services and support due to the impact of aging. Since cancer patients are receiving extended care at home more often because of the advances in treatment and other healthcare changes, care at home has become more common.

One of the problems is long-term care services are generally not paid by regular health insurance or, for those 65+, Medicare. A limited amount of skilled services are paid for, and custodial care, which is help with routine activities of daily living (ADLs) are not paid for at all. Therefore, the stress and pressure of caregiving are placed on family, friends, and neighbors unless the person receiving care has substantial assets to pay for paid care.

Long-Term Care Insurance Provides Access to Choice of Quality Care

Those who purchase Long-Term Care Insurance have access to their choice of quality care, either at home or in a facility. These policies have become key to asset protection but also reduce the tremendous stress and burden placed on these informal family caregivers.

There are some differences in caregiving for cancer patients, for example, and those who require long-term care services for other aging or health reasons. For instance, caregivers caring for those people with cancer are significantly more likely to be caring for someone age 65 to 74 while caregiving for non-cancer related issues tends to be age 75+, according to the NAC.

The type of care provided by a family caregiver generally covers the major activities of daily living. These include something as simple as helping a person get dressed or things like bathing or dealing with incontinence or bowel issues.

Those who are suffering from cancer often need help with ADLs due to the nature of cancer and the treatment for the disease. This can vary depending on the type of cancer, the progression or stage of the cancer, and the type of treatment being used. The NAC says survivors experience common side effects such as pain, fatigue, and mental confusion or memory loss, as well as appetite loss, all of which might adversely impact daily functioning and lead the recipient to require greater assistance.

While many people think of long-term care services and support being age-related, cancer and other diseases and accidents cause the need for help with ADLs.

In addition, with the normal ADLs, people also require help with what is referred to as “Instrumental Activities of Daily Living” or “IADLS.” These are activities that people need help to support their normal living. These include housekeeping, preparing food, communication, and telephone usage, laundry, transportation, medication management, bill paying, shopping, mobility, and general home maintenance.

Family Caregivers Face Many Challenges

Caregiving is always stressful for a family caregiver, no matter the reason the person needs care. Caregivers usually have their own careers, families, and responsibilities. Attempting to be a caregiver, on top of other responsibilities, places a tremendous amount of stress and burden on that family member and their family. The more care the person requires, the more significant the stress and burden on the caregiver.

The NAC study showed that cancer caregivers and non-cancer caregivers do not vary in terms of their own job status. The report says these caregivers are employed at similar rates, they have similar workplace benefits, and experience similar need to make workplace accommodations.

“Caregiving is an issue that affects people of all different backgrounds—men and women,” said C. Grace Whiting, president of the NAC.

 “We are really talking about caregiving across a lifespan,” she said.

Another NAC study conducted in cooperation with the AARP reported 60% of caregivers are women.

Since women often become caregivers, this often places major stress on mid-career women -

 Family leave laws will help some of those caregivers, but the best way to address the issue is to plan in advance, so these burdens don't get placed on family members.

About the Author

Linda is a former journalist who now enjoys writing about topics she is interested in so she “can keep her mind active and engaged”.

Editor's Note

Long-Term Care Insurance provides tax-free resources to pay for your choice of quality care, either at home or in a facility. These benefits are available to safeguard your savings as well. Caregiving is hard on loved ones, and paid care drains assets and can impact income and lifestyle.

People require long-term care services and support for many reasons, in addition to aging and cognitive decline. Health insurance, Medicare, and MedicareSupplement pay for only a limited amount of skilled services and nothing toward custodial care (ADL assistance or supervision due to cognitive decline). 

Most long-term care is custodial in nature, which places the responsibility on the American family unless you plan ahead. Remember, health insurance and Medicare, including Medicaresupplement, will not pay for custodial care. 

Long-Term Care Insurance is Affordable

Long-Term Care Insurance is easy and affordable for most people to obtain, especially if you act before retirement. Most states have partnership plans which provide additional asset protection. Some states have tax incentives, and federal tax incentives exist for some people as well.

Find the current and future cost of care services in your area by using the LTC NEWS cost of care calculator.  You will also find other essential information, including the availability of tax incentives and partnership plans. Click here to use the calculator. 

Seek the help of a qualified and trusted Long-Term Care Insurance specialist to help you shop for the best coverage and the best value. Click here and find your specialist.

Nobody likes insurance, but certainly, nobody wants to place the responsibility of future care on the shoulders of family members. Nor do most people wish the drain hard-earned assets for paid care.

Long-Term Care Insurance has already paid over $11 billion in 2019 alone to pay for care services. The policies work and reduce the stress and burden otherwise placed on those you love.

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LTC News Contributor Linda Maxwell
Linda Maxwell

Contributor Since
December 11th, 2017

Former journalist who now enjoys writing about topics she is interested in.

About the Author

Linda is a former journalist who now enjoys writing about topics she is interested in so she “can keep her mind active and engaged”.

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