In an interview with Haute Living's November/December issue, Michael J. Fox says he hasn't allowed Parkinson's Disease to stop him - despite a doctor who told him he had 10 years of work left back when he was just 29. Reports indicated his health was in deep decline based on a tabloid magazine’s report. The Globe and its publisher American Media Inc. apologized for publishing a story that grossly exaggerated that his physical and mental health was in deep decline because of Parkinson's disease.
Fox was working on the movie “Doc Hollywood” in 1991 when he learned about his condition. The published article says he waited seven years to announce his condition to the world since he felt it would hurt his acting career. He claims he was in denial.
His foundation website offers a number of resources for both researchers as well as the public, including those suffering from Parkinson’s and Lewy Body Dementia: www.michaeljfox.org
If his Parkinson’s progresses Fox may need help with his normal activities of daily living. Some people who suffer from this condition also requires supervision due to memory loss.
Fox has in recent years appeared on some episodes of the CBS TV series ‘The Good Wife’.
He said: "It was pretty scary. I was 29 years old and so it was the last thing I expected to hear.” "I thought I'd hurt my shoulder doing some stunt because I had a twitch in my pinkie. And the doctor said 'You have Parkinson's disease.' He said, 'The good news is that you have 10 years of work left'."
Speaking with David Letterman a number of years ago, Fox described the day he received his diagnosis.
Another complicating factor is that many people with both dementia with Lewy bodies and Parkinson's disease dementia also have plaques and tangles — hallmark brain changes linked to Alzheimer's disease.
Lewy bodies are also found in several other brain disorders, including dementia with Lewy bodies (DLB). Evidence suggests that dementia with Lewy bodies, Parkinson's disease and Parkinson's disease dementia may be linked to the same underlying abnormalities in brain processing of alpha-synuclein.
The key brain changes linked to Parkinson's disease and Parkinson's disease dementia are abnormal microscopic deposits composed chiefly of alpha-synuclein, a protein that's found widely in the brain but whose normal function isn't yet known. The deposits are called "Lewy bodies".
According to the Alzheimer’s Association, the brain changes caused by Parkinson's disease begin in a region that plays a key role in movement. As Parkinson's brain changes gradually spread, they often begin to affect mental functions, including memory and the ability to pay attention, make sound judgments and plan the steps needed to complete a task.
Today he devotes much of his time to the Michael J. Fox Foundation, which he set up in 2000. He has said his goal is to put the foundation out of business. Parkinson’s creates a number of health issues which generally increase over time.
Many people are unaware that the custodial care and supervision required due to Parkinson’s and related dementia are not covered by health insurance or Medicare. These costs are generally paid out-of-pocket unless a person has Long Term Care Insurance. Medicaid, the medical welfare program, will pay for these costs for those with little or no resources.